Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...

I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...

Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...

Our cells contain DNA, a molecule that stores all the genetic information needed to make proteins. A gene is a specific sequence of DNA that carries the instructions for making a protein. In ...

In December 2023, I officially graduated college with my bachelor’s in marketing from Western Michigan University — go Broncos. What is less known about my time in college was the juggling act that I ...

Every year, researchers and clinicians gather to share the latest information on cystic fibrosis research and care at the North American Cystic Fibrosis Conference (NACFC). This year’s conference was ...

I am a part of the approximately 10% of people with cystic fibrosis who are unable to benefit from or tolerate modulators such as Trikafta ® and, every day, I position myself to advocate for research ...

I was diagnosed with cystic fibrosis when I was about to turn 3 years old, so I do not know my life without this disease. As much as I fought it for years, cystic fibrosis is part of my identity and ...

The Connecticut Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.

With chest physical therapy (CPT), the person gets in different positions to use gravity to drain mucus (postural drainage) from the five lobes of the lungs. Each position is designed so that a major ...

To ensure that people with CF continue to experience steady gains in length and quality of life, the Foundation helps its accredited care centers provide a standard of CF care with guidelines. We base ...